Information We May Collect About You
Personal information is information that identifies you as an individual or relates to an identifiable individual. We may collect and process the following personal information about you:
- Contact information (such as name, email address, mailing address) that you provide by completing forms on the Site;
- Payment information (such as credit card information);
- The content of any communications that you send to us;
- Information described to you at the point of collection or pursuant to your consent.
By providing your personal information to us via the Site, you agree to the terms of this Privacy Statement. If you choose not to provide personal information, we may not be able to provide you with the requested services.
How We Use Your Personal Information
Subject to applicable data protection laws, we may use your personal information for the following purposes:
- to provide you with the services and information offered through the Site, including processing your donations to the FOXG1 Research Foundation or processing your contributions to the FOXG1 Research Biobank via the Site.
- to contact you and respond to your requests and inquiries;
- for business administration purposes;
- to send you newsletters regarding the FOXG1 Research Foundation and relevant scientific updates.
- for fraud prevention and detection and to comply with applicable laws, regulations or codes of practice.
Sharing Of Your Personal Information
We may use selected third parties to provide us with services, including companies that provide us with technical support and assistance in respect of the Site, who may have access to your personal information while performing services on our behalf. Similarly, we may share your personal information as required or permitted by law to comply with a subpoena or similar legal process or government request, or when we believe in good faith that disclosure is legally required or otherwise necessary to protect our rights and property, or the rights, property or safety of others, including to advisers, law enforcement, judicial and regulatory authorities. We may also transfer your personal information to a third party in the event of any reorganization, merger, sale, joint venture, assignment, transfer or other disposition of all or any portion of our business, assets, or shares (including in connection with any bankruptcy or similar proceedings.)
Communication From Us
We may periodically send you e-mails to provide information about us, relevant scientific or clinical developments, community events, and other related information. If applicable law requires it, we will obtain your consent before sending such emails. If you wish to stop receiving all communications or only certain types of communications from us, you can contact us at CONTACT@FOXG1RESEARCH.ORG.
Your European Privacy Rights
For European residents only. Under European data protection law, you may have certain data subject rights, which may be subject to limitations and/or restriction. These rights may include:
- The right to access to your personal data;
- The right to obtain rectification of your personal data without undue delay where that personal data is inaccurate or incomplete;
- The right to request that personal information held about you is deleted;
- The right to obtain the restriction of the processing undertaken by us on your personal data in certain circumstances, such as where the accuracy of the personal data is contested by you;
- The right to object to processing based on legitimate interests and direct marketing; and
- The right to data portability, which allows you to move, copy, or transfer personal information from one organization to another, where technically feasible.
Where we have obtained your consent for the processing of your personal data, you have the right to withdraw your consent at any time. This will not affect the lawfulness of the processing that we carried out prior to the withdrawal.
For purposes of European data protection laws, FOXG1 Research Foundation is the data controller, the company responsible for controlling the processing of personal information covered by this Policy.
To exercise these data subject rights or withdraw consent, you should submit a written request to CONTACT@FOXG1RESEARCH.ORG. You also have the right to lodge a complaint about the processing of your personal information to your local data protection authority.
Security and Retention of Your Personal Information
We use a variety of security technologies and procedures to help protect your personal information from unauthorized access, use, or disclosure. However, no method of security or method of transmission over the Internet can be guaranteed to be 100% secure. You should always use caution when transmitting personal information over the Internet.
Cookies and Other Similar Technologies
The Site may, from time to time, contain links to external sites operated by third parties. We are not responsible for these third party sites or the content of such third party sites. Once you have left the Site, we cannot be responsible for the protection and privacy of any information which you provide. You should exercise caution and look at the privacy statement for the website you visit.
Children’s Online Privacy
This Site is not directed towards children under 13 years of age nor do we knowingly collect information from children under 13. If you are under 13, please do not use the Site or submit any personal information to us. If you believe that we have unintentionally collected personal information about your child, you can contact us as described below.
Please note that this Site is provided for informational purposes only. It is not intended as a substitute for informed medical advice. The user of this Site should not use this information to diagnose or treat a health problem or disease without consulting with a qualified health care provider, specific tests, physicians, procedures, opinions, or other qualified medical information.
Changes to this Policy
This Policy is subject to occasional revisions and if we make material changes to this Policy, we will notify you by means of a prominent notice on this Site.
Information we collect and how we may use it
If you are a customer of Kindful, we collect certain information about you in order to provide you with our donor management system and/or online payment service (the “Service”). When you register for the Service we will request some personal information such as your name and email address, and information about your organization such as the name of your organization, Tax ID, mailing address, and tax designation. Furthermore, if you are opening a merchant account, Kindful may also obtain information about you from third party sources, including, without limitation, consumer reporting agencies. This information is used to contact you about the services on our Site for which you have expressed an interest. As part of the Service, we may also collect donor information on behalf of your organization. Except as may be expressly set forth herein, we will not use any donor information collected on your behalf for any purpose other than to provide the Service. Any tax or financial information we collect is used only to bill you for the Service. If you purchase the Service by credit card, this information will be transmitted to our credit card merchant account provider, and may be forwarded to your credit card provider. We do not store credit card information.
If you are a donor for a Kindful customer, we collect certain information from you in order to process your donation (“Donor Information”). Kindful will use Donor Information during the course of providing the Service to such Kindful customer. Kindful may also use Donor Information at an aggregate level for internal business analyses and fraud prevention. During the course of providing the Service to Kindful customers, Kindful may disclose Donor Information to banks, processors, card associations, and other financial institutions that are involved in the course of processing or screening the transaction applicable to the Donor Information.
We may use personal information for internal purposes to provide you with other products and services, or to contact you regarding administrative notices or communications relevant to you on this Site. In addition, we may use personal information to provide or improve products or services that you have requested.
We will only use access to read Gmail message bodies (including attachments), metadata, headers, and settings to display emails to authorized users of Kindful and will not transfer this Gmail data to others unless doing so is necessary to provide and improve these features, comply with applicable law, or as part of a merger, acquisition, or sale of assets.
We will not use this Gmail data for serving advertisements.
We will not allow humans to read this data unless we have your affirmative agreement for specific messages, doing so is necessary for security purposes such as investigating abuse, to comply with applicable law, or for our internal operations and even then only when the data have been aggregated and anonymized.
When we disclose your information
Kindful takes your privacy very seriously. The information we collect is used to provide the Service, and, in general, is not shared with or sold to other organizations for commercial purposes. However, there are times when it may be advantageous for Kindful to make certain personal information about you available to companies that Kindful has a strategic relationship with or that perform work for Kindful to provide products and services to you on our behalf. These companies may help us process information, deliver products or services to you, provide customer service, manage and enhance user data, assess your interest in our products and services, or conduct user research or satisfaction surveys. We may also disclose your personal information, if you have authorized us to act on your behalf to initiate the creation of a merchant account for the purpose of accepting donations by credit card.
At times we may be required by law or litigation to disclose your personal information. We may also disclose information about you if we determine that for national security, law enforcement, or other issues of public importance, disclosure is necessary.
In addition, Kindful may sell, transfer or otherwise share some or all of its assets in connection with a merger, acquisition, reorganization or sale of assets, or in the event of bankruptcy. In such an event, personal information may be one of the assets transferred.
How we protect your personal information
Kindful takes precautions to safeguard your personal information against loss, theft, and misuse, as well as unauthorized access, disclosure, alteration, and destruction. Please be aware, however, that despite our efforts, no security measures are perfect or impenetrable and no method of data transmission that can be guaranteed against any interception or other type of misuse.
You can help us by also taking precautions to protect your personal data when you are on the internet. Do not share your registration information with anyone, and make sure you use a secure web browser.
Accessing your information
This Site may contain web pages through which you can correct or update some of the personal information you have provided to us. Kindful will make a good faith effort to make requested changes and correct your data if it is inaccurate or delete the data if we are not required to retain it by law or for legitimate purposes.
Cookies and other technologies
To make this Site more useful to you, we automatically gather general statistical information about this Site and its visitors, such as IP addresses (and information tied to IP addresses, such as screen size, color depth, language, java enabling, flash version, page title, host name, referring source, and page path), browsers, pages viewed, number of visitors, services purchased, etc. In doing so, we do not reference you by name, email, mailing address, or any similar personal information. We use this data in the aggregate to learn about our visitors and to improve our ability to cater to their needs. We may use third party vendors to gather general statistical information about this Site and its visitors as well as to perform certain services on behalf of this Site, such as hosting this Site, designing or operating this Site’s features, or performing other administrative services. We may provide these companies with access to your personal information to carry out the services they are performing for you or for Kindful.
Your California Privacy Rights
If you are a California resident and request information about how to exercise your third party disclosure choices you must send a request to email@example.com.