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Caleb’s 2023 Conquer FOXG1 Crew!

Caleb O'Neal / 2023 Race to a Cure

November is FOXG1 Awareness Month! Our wonderful community and researchers are moving forward on the path to a cure for FOXG1 syndrome and we would love for you to join Calebs 2023 Conquer FOXG1 Crew!

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About Caleb’s 2023 Conquer FOXG1 Crew!

Our family would love for you to be a part of our devoted team, Calebs Conquer FOXG1Crew for the second year to help him and all his FOXG1 friends live a better life without suffering.  We are so excited to add you to Caleb’s team with your support, devotion, and contribution.   In six years, we have blazed a trail from basic to translational science. We have now identified a very promising gene therapy program that we are working to bring to clinical trials. We’re seeing groundbreaking, curative results in preclinical data!

The next steps to get to clinical trials are…toxicology and GLP Manufacturing, to test for safety. This phase costs a minimum of five million dollars. This will take a large fundraising effort, and every incremental goal brings us closer.

We are beyond appreciative of your support, and we can't wait to give you more updates.  YOU make the BIGGEST difference in Caleb and all his FOXG1 friends LIVES!! 

 

About FOXG1 syndrome: 

FOXG1 syndrome is a rare neurological genetic disorder that impacts brain development and typically causes epilepsy, as well as a spectrum of severe to moderate physical and cognitive disabilities. Mutations to the FOXG1 gene are mostly (de-novo) non-inherited. There are currently about 900 known people in the world diagnosed with FOXG1 syndrome.

 

Links
Path to a Cure: https://foxg1research.org/curefoxg1
Current Research: https://foxg1research.org/foxg1-research-project
Family Support: https://foxg1research.org/newly-diagnosed-foxg1
Resources for Families: https://foxg1research.org/resources

 

Hashtags
#FOXG1racetoacure
#foxg1
#raredisease
#rarediseaseawareness
#CureFOXG1
#foxg1syndrome
#foxg1awareness

Tags
@foxg1research (instagram)
@foxg1researchfoundation (Facebook)

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