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Finn's 2023 Team

Stevie Botti / 2023 Race to a Cure

To raise $30k for FOXG1 Research Foundation whose mission is to accelerate research to find successful therapeutics for FOXG1 and related neurological disorders while raising awareness and advocating for Finn and our family.

  • $29,125

    Raised

  • $30,000

    Goal

  • 62

    Supporters

  • 0

    Days Remaining

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About Finn's 2023 Team

Finn is our FOXG1 fighter! Finn is 3 years old and is a happy, silly boy who has the BEST smile and laugh and awesome eyelashes! He amazes us everyday with his strength, perseverance and grit despite the challenges of FOXG1 syndrome. Finn is globally delayed. He is unable to sit or stand without assistance for more than 20 seconds and relies on alternative methods of communication (e.g., switches, gestures, vocalizations, eye gaze, etc.). He suffers from movement disorders that impact his everyday life; specifically, he has hyperkinetic movements (i.e., unwanted and excess movements) and dystonia (i.e., potentially painful muscle spasms). Finn struggles with both reflux and constipation and relies on medication to assist with these bodily functions. The FOXG1 Research Foundation has given our family hope and a supportive community. We believe in their mission and the scientists and know that we are so close to finding successful therapies for our Finn and all the other individuals living with FOXG1 syndrome globally.

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