FOXG1 syndrome is a rare neurodevelopmental disorder and is characterized by challenges including delayed development, difficulty with movement, and seizures, among others. Still, Sara is a tenacious little girl. She wants to do everything and tries so hard. This diagnosis has brought with it a wealth of emotions and a commitment to seek out the best care and support for our little girl. 

We hope to help in the effort of fundraising to begin the testing FDA approved drugs and gene therapies for FOXG1 syndrome, which could bring us one step closer to a cure. We are deeply grateful for any form of support you can offer.

As a community, we have the power to make a significant impact, and I am hopeful that together we can contribute to a better future for my daughter and all children with FOXG1.