November is FOXG1 awareness month! 🧡🦊🧡 Sebastian was diagnosed with FOXG1 syndrome & bilateral vocal cord paralysis along with paralysis of the larynx ‘ Airway malacia Microcephalic ‘ Cortical blindness & a few other medical conditions as well all conditions having to due with his FoxG1 diagnosis when he was 6 months old He is now 4 years old and is severely impacted by his conditions he has seizures inability to control body movements ‘  lack of speech he is not able to walk , talk ' sit & suffers from many breathing issues as well he has a feeding tube along with a trach & was put in to hospice & palliative care a little over a year ago Sebastian has since than come so far in his journey I am so proud of the little boy he has become He is resilient determined & a never ending fighter He is always extremely happy smiling & laughing his good days forever outweighs his bad he has given myself & his family the most priceless perspective on life FOXG1 is a key to understanding many brain-related disorders let’s help these beautiful kids like Sebastian in finding a cure ❤️🧡💖

#Mylittlehero #FOXG1 #FOXG1awareness #FacesofFOXG1 #Sebastianstrong