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Corbi-Bug's Fan Club

Caroline Menzia / FOXG1 Fundraising Teams

Corbi-Bug's Fan Club is raising money for the FOXG1 Research Foundation to fund research for a cure to FOXG1 Syndrome.

  • $6,155

    Raised

  • $10,000

    Goal

  • 72

    Supporters

Team Members

Recent Transactions

About Corbi-Bug's Fan Club

Like most of you, we had never heard of FOXG1 until Corbin received a diagnosis of FOXG1 Syndrome in July when he was only 9 months old. This diagnosis came after months of other really scary diagnoses including Infantile Spasms (5 months old) and a serious form of Epilepsy called Lennox-Gastaut. These, along with developmental delays (diagnosed at 3 months), eating challenges and vision issues (all of which Corbin struggles with), are complications caused by FOXG1, a super super rare genetic and neurological disorder. Over his short life Corbin has had multiple hospital stays, an MRI, numerous EEGs, more needle pricks and blood draws than most of us will experience in a lifetime, been on a steroid Bryan (dad) had to give him twice daily, tried several seizures meds, countless physical and occupational therapy appointments and is now on the keto diet as well as using a feeding tube. (and this only feels like the tip of the iceberg of all he/we have been through) We’d love your help raising money for the FOXG1 research foundation. This foundation is doing great work to find a cure and create a better future for our FOXG1 babies. Please help us fund the scientists who are working to improve the lives of all of our children! For more information on FOXG1 Syndrome visit foxg1research.org

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