About Courageous Noah
This is our Official Team Fundraising page! Noah was diagnosed with FOXG1 syndrome when we was just 15 months old. As a family, it was incredibly hard adapting and learning all about this condition and what it ment for our precious son.
Even tho we had to face many battles (even with professionals) as many do not know what FOXG1 syndrome is. Noah was diagnosed with over 10 diagnosis. Including global developmental delay, Cortial vision impairment, Gastro issues, feeding issues. He couldn’t control his temperature, high risk of aspiration, low immune system and so much more. Noah faced many hospital visits, tests , constant appointments. He never let that stop him.
He was always so happy, his smile lite up every room. No matter what hardships he faced he never let it show. His cuddles and laugh would just instantly make you smile.
Unfortunately we lost our ray of sunshine on 17th May 2023. We had 5 amazing years with him. He was the best Son, little brother, Cousin, Nephew, grandson, friend. Unfortunately he never got to meet his little sister. But he would have been the best big brother.
From something that has thrown our family into darkness. We want to make Noah proud. Be the light he taught us to be. As a family our goal is to raise awareness and money to help find a cure for our precious fox warriors 🦊
