Grace's Groupies
Emily Duggan / FOXG1 Fundraising Teams
Join me in this incredible story that is unfolding, together. Let's fund the scientists who are working on a cure and therapies to give all FOXG1 children the life they deserve.
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$3,635
Raised
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$1,000
Goal
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60
Supporters
Recent Transactions
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Nancy Dewar-Stenning
$25.00 / 894 days ago
Merry Christmas sweet little Gracie and family! Love, Nancy and Brad
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Karl & Gail Johnson
$50.00 / 918 days ago
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Clarice Goodyear
$50.00 / 926 days ago
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David Lamberton
$80.00 / 926 days ago
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Tim Kelly
$20.00 / 927 days ago
Grace always enjoys the yard decorations of our neighbour Elaine carter who made a donation to fund fox g1 research. Thank you Elaine!
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Lisa Blais
$20.00 / 927 days ago
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Sandy Theriault
$50.00 / 928 days ago
Wishing sweet Grace Kelly a very happy 6th birthday! Her fundraising team has done a tremendous job helping to raise awareness of the FOXG1 Research Foundation! Trust the money will be put to very good use and will benefit these children and their families!
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Stephanie Sheeler Armstrong
$100.00 / 929 days ago
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Jocelyn Harris-Horne
$25.00 / 929 days ago
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Erik Von Stackelberg
$100.00 / 929 days ago
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Merle and Ernie Blake
$50.00 / 929 days ago
Happy birthday, dear little Grace. Lots of love to you and your family!
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Carol MacDougall
$20.00 / 929 days ago
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Mary Royal
$50.00 / 929 days ago
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Theresa Darlene Chisholm
$100.00 / 929 days ago
Such a great cause, for such a beautiful little girl. Wishing you great success on this fundraising
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Carter Stevens
$50.00 / 929 days ago
We live in a small community. People tend to help one another. We hope that our donation will encourage others to donate. Hopefully someday there will be a cure . Happy Birthday Grace. Carter and Wendy Stevens
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Carla Kennedy
$20.00 / 929 days ago
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Laurie Gravelle
$25.00 / 929 days ago
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Anna Mary McKenney
$50.00 / 929 days ago
Celebrating Grace’s birthday, from Grandma Marnie and Grandpa Doug.
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About Grace's Groupies
This is our Official Team Fundraising page to raise awareness and funds for scientific research! Grace was diagnosed with FOXG1 syndrome when she was 6 months old. FOXG1 syndrome is a rare neurological genetic disorder that impacts brain development and function. There are currently about 900 known people diagnosed with FOXG1 syndrome worldwide. Mutations of the FOXG1 gene are mostly non-inherited with multiple variants that affect individuals differently along the spectrum of severity. Grace has a duplication of the FOXG1 gene (an extra copy) which has caused epilepsy and has impacted her physical and cognitive development, which means she is non-ambulatory, non-verbal, and g-tube fed. We have faced many obstacles throughout Grace's life to find the best treatment and medications that work for her. We have found great success in using the ketogenic diet to manage Grace's seizure disorder and she has been seizure free for a year! With the support of her doctors, specialists, and therapists, Grace's health is stable and she is thriving. We are excited about the work being done by the FOXG1 Research Foundation and are hopeful for the positive impact this will have for FOXG1 syndrome. Please join us in supporting our scientists who are testing medications and therapies and working toward clinical trials that will benefit all people with FOXG1 syndrome.