Finn’s FOXG1 Fight
Stevie Botti / FOXG1 Fundraising Teams
FOXG1 is an incredibly rare disease, but we are very hopeful that we will find a cure for our Finn. The FOXG1 Research Foundation is leading the charge and we intend to support them in every way we can.
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$111,790
Raised
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$100,000
Goal
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82
Supporters
Team Members
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Jeff Botti
$9,215.00
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Philip Crowe
$6,045.00
Recent Transactions
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Joyce Magrini
$20,000.00 / 49 days ago
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Eileen Consolo
$100.00 / 54 days ago
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Capitol Petroleum
$10,000.00 / 79 days ago
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Joanne Tyluki
$50.00 / 81 days ago
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Alex and Roberta Cwiekalo
$50.00 / 114 days ago
Happy Birthday, Finn, and God bless you and your family always.
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Anonymous
$10,000.00 / 124 days ago
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Joyce Magrini
$2,000.00 / 126 days ago
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Eileen Consolo
$100.00 / 128 days ago
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Eileen Consolo
$250.00 / 151 days ago
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Alex and Roberta Cwiekalo
$100.00 / 156 days ago
Merry Christmas (Mele Kalikimaka) Finn. May God bless and watch over you and your family.
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Eileen Consolo
$250.00 / 174 days ago
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Eileen Consolo
$100.00 / 209 days ago
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Norman Maron
$250.00 / 280 days ago
Thank you all for permitting me the opportunity to support this special young man, who is surrounded by an incredible family, in this a most noble cause, namely FOXG1 Research.
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Eileen Consolo
$100.00 / 303 days ago
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Eileen Consolo
$100.00 / 401 days ago
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Patricia Mehlem
$100.00 / 433 days ago
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Eileen Consolo
$100.00 / 439 days ago
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Capitol Petroleum
$10,000.00 / 469 days ago
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Eileen Consolo
$250.00 / 485 days ago
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Alexander Cwiekalo
$500.00 / 485 days ago
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Lynn Davis
$100.00 / 506 days ago
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Page Adler
$500.00 / 507 days ago
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Stanley and Elizabeth Star
$500.00 / 507 days ago
About Finn’s FOXG1 Fight
Finn is our FOXG1 fighter! Finn is 4 years old and is a happy, silly boy who has the BEST smile and laugh and awesome eyelashes! He amazes us everyday with his strength, perseverance and grit despite the challenges of FOXG1 syndrome.
Finn is globally delayed. He is unable to sit or stand without assistance for more than 20 seconds and relies on alternative methods of communication (e.g., switches, gestures, vocalizations, eye gaze, etc.). He suffers from movement disorders that impact his everyday life; specifically, he has hyperkinetic movements (i.e., unwanted and excess movements) and dystonia (i.e., potentially painful muscle spasms). Finn struggles with both reflux and constipation and relies on medication to assist with these bodily functions.
The FOXG1 Research Foundation has given our family hope and a supportive community. We believe in their mission and the scientists and know that we are so close to finding successful therapies for our Finn and all the other individuals living with FOXG1 syndrome globally.