
Gianna's Team
Courtney & Zach Horton / FOXG1 Fundraising Teams

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$326,133
Raised
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$150,000
Goal
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180
Supporters
Recent Transactions
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Kimberly Steinfeldt
$1,000.00 / 382 days ago
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The Pat Nicolette Charitable Gift Fund
$500.00 / 532 days ago
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Hadley Arkes
$100.00 / 533 days ago
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Michael Graff
$5,000.00 / 551 days ago
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Maya Leibman
$5,050.93 / 575 days ago
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David Meeh
$1,000.00 / 589 days ago
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Adam Ferrante
$250.00 / 625 days ago
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Stephen Whelan
$1,000.00 / 674 days ago
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The Pat Nicolette Charitable Gift Fund
$200.00 / 716 days ago
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GE Foundation
$5,000.00 / 853 days ago
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GE Foundation
$5,000.00 / 853 days ago
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Paula Reynolds
$5,000.00 / 853 days ago
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Virasb Vahidi
$8,800.00 / 874 days ago
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Anonymous
$250.00 / 878 days ago
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Thomas Horton
$25,000.00 / 914 days ago
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Adebayo Ogunlesi
$50,000.00 / 914 days ago
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Bella Goren
$5,000.00 / 920 days ago
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Henry Joyner
$1,000.00 / 920 days ago
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Robert Decherd
$5,000.00 / 924 days ago
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Robert O'Brien
$50,000.00 / 924 days ago
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Tom Roberts
$7,500.00 / 928 days ago
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Richard Pedersen
$1,000.00 / 932 days ago
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Terri Surbey
$100.00 / 986 days ago
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Andrew Backover
$1,000.00 / 1139 days ago
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Kathleen Fieweger
$250.00 / 1222 days ago
Rooting for little Gianna and all the Hortons. Kathy Fieweger and Family
About Gianna's Team
Gianna Concetta ("Gigi"), our 14 month old little girl with fox-like red hair, was diagnosed with FOXG1 Syndrome in January 2021. Though an initial shock to us, the diagnosis explained a lot of the challenges of her first year of life: Gianna's difficulty with sleeping and eating, and inability to meet typical developmental milestones like sitting up, holding toys, crawling, and babbling. Still, Gianna is a tenacious little girl: She wants to do everything and tries so hard. She's been a pugilist since she was in the womb, and she's a little fighter to this very day. With a rigorous regimen of therapies---physical, occupational, speech, feeding---we hope that someday she will walk and talk.
At the same time, we hope to help in the effort of fundraising 1.5 million dollars to begin the testing FDA approved drugs and gene therapies for FOXG1 syndrome, which could bring us one step closer to a cure.
More than anything, we ask for your prayers. We ask firstly that you go to Mary, the Mother of God, and to St. Joseph, whose year we are presently celebrating. We also ask you to consider seeking the intercession of the newly venerable Dr. Jerome Lejeune, the geneticist who discovered trisomy 21.
Trusting in God's Providence, we know that caring for Gianna (and soon her little sibling!) is part & parcel of our vocation to marriage, and that the many occasions for self-sacrifice that our children will afford us are blessings: They are opportunities for sanctification, chances for us, by the Grace of God, to become holy in our calling as a married couple. And for this, we thank God, to whom we owe everything and in whom we place our ultimate trust.
Courtney & Zach