Orion in the Woods

Kate Lane / FOXG1 Fundraising Teams

Join me in this incredible story that is unfolding, together. Let's fund the scientists who are working on a cure and therapies to give all FOXG1 children the life they deserve.

  • $3,284

    Raised

  • $3,000

    Goal

  • 32

    Supporters

Recent Transactions

  • Deborah Lane

    $200.00 / 936 days ago

    Our Grandson, Orion, is 4 years old. His mom knew he was not developing or meeting milestones. After much testing he was diagnosed with FOXG1 in his second year. While this was devastating news we could at least know what was wrong. He is loved unconditionally. And gives us great joy when he smiles and laughs. While there is no cure, there is always hope. Thank you for your hard work that can possibly enhance the lives of these children.

  • Laurel Holder

    $50.00 / 1173 days ago

  • Robert Hunt

    $500.00 / 1348 days ago

    From Lynn and Robert Hunt with love

  • Victoria Hunt

    $100.00 / 1364 days ago

    ❤️❤️❤️

  • Lori Porter-Kincer

    $100.00 / 1372 days ago

  • Andy Mcfate

    $25.00 / 1402 days ago

  • Christina Lane

    $100.00 / 1424 days ago

  • Laura Russell

    $100.00 / 1425 days ago

  • Darleen Benson

    $100.00 / 1427 days ago

    We love this precious family and we are blessed to be their neighbors and to drink the milk of their beautiful cows!!

  • Becky Bollinger

    $100.00 / 1427 days ago

  • Allison Mccarty

    $100.00 / 1428 days ago

  • Stephen OMara

    $209.00 / 1428 days ago

    From Tupac and Snoop

  • Carole Strateman

    $100.00 / 1429 days ago

  • Barbara Dickie

    $100.00 / 1429 days ago

  • Wilma Korb

    $25.00 / 1429 days ago

  • Lisa Sopourn

    $100.00 / 1440 days ago

    Love you Orion!

  • Hayley Wells

    $100.00 / 1442 days ago

  • Daria Datnoff

    $50.00 / 1442 days ago

    We love Orion and love your family and are happy to be supporting this fundraiser!! 💕

  • Victoria Hunt

    $100.00 / 1476 days ago

    Love to Orion and family ❤️

  • Leanna Joyner

    $60.00 / 1491 days ago

  • Krista Hoff

    $100.00 / 1523 days ago

  • Anne Jowaisas

    $50.00 / 1523 days ago

  • Helen O'Mara

    $50.00 / 1524 days ago

  • Rebekah Rhodes

    $50.00 / 1524 days ago

  • Barbara Dickie

    $50.00 / 1526 days ago

About Orion in the Woods

Thank you Friends and Family for supporting Orion and the other children that have Foxg1 syndrome.   This research website has some incredible information on the proposed projects they will get to begin soon thanks to all the support community members have given these past few months!   

Orion is almost three years old and is unable to sit up, crawl, or walk.  But he can roll and boy does he really want to move !    He struggles with eating by mouth and primarily feeds via a gtube which has helped him gain weight after he received a failure to thrive diagnosis as a two year old.   He is currently unable to speak, but has a wicked sense of humor.  He absolutely loves the Muppets, toy cars, loud construction sounds, swinging and playing with his big sister.   

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