Aidyn's Fight for a Cure

Tessa Gottlieb / FOXG1 Fundraising Teams

Join me in this incredible story that is unfolding, together. Let's fund the scientists who are working on a cure and therapies to give all FOXG1 children the life they deserve.

  • $2,470

    Raised

  • $10,000

    Goal

  • 18

    Supporters

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About Aidyn's Fight for a Cure

Our daughter, Aidyn Mae, was diagnosed with an extremely rare genetic disorder, FOXG1, when she was 6 months old.  FOXG1 affects less than 500 people worldwide, but it has devastating implications on a child's mobility, speech, vision, and digestion.  We were crushed by the news, but it explained so much about Aidyn's developmental delays.  Although smiley and cuddly, Aidyn could not maintain eye contact, roll over or grasp objects.  Aidyn has a rigorous schedule of physical therapy, occupational therapy, feeding therapy, and vision therapy, and our prayers everyday are that Aidyn would one day learn to sit up, crawl, walk, and speak.  

First and foremost, we ask that you pray for AIdyn.  Please pray that she would grow and develop and be free from pain.  We ask that you pray for strength for our family, as Aidyn's care is intense and constant.  

 This foundation was started by parents of children with FOXG1 Syndrome, just like us, and in just a few short years, it has assembled a top-tier Scientific Team to develop translation science including gene therapies; antisense therapies, small molecule therapies, and emerging therapies that could help correct the FOXG1 mutation.  

Aidyn is a fighter and works so hard in all her therapies, and she loves being with her family, dancing with her daddy, and hearing her brother's constant chatter throughout the house!  We love her tremendously and are so thankful for her.  We ask that you partner with us on this journey and are so thankful for your prayers and support!

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