Team Eliza

Christopher Paparo / FOXG1 Fundraising Teams

Help Eliza get on her feet, use her voice, and beat FOXG1 Syndrome!
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79%

  • $3,935

    Raised

  • $5,000

    Goal

  • 30

    Supporters

Recent Transactions

About Team Eliza

Help little Eliza cure FOXG1 syndrome! The excellent FOXG1 Research Foundation estimates they are about two years away from clinical trials of two different gene therapies to complete or improve the function of the missing gene, our fundraising team will give a little boost to the efforts to bring therapies closer to approval!

Eliza was diagnosed in May 2023 with severe and ultra-rare genetic disorder, specifically a deletion within the FOXG1 gene, which is critical to healthy development. Because it is so rare (under 1,000 known cases) it’s up to parents and supporters to lead the charge toward a successful treatment. 

Eliza has struggles with meeting physical milestones, weight gain, vision, and movement disorders. Gene therapies like those funded and advanced by the foundation are the most promising treatments for the disorder.

If you are interested, here’s a link to the four avenues the foundation is advancing that you are supporting (https://foxg1research.org/foxg1-research-projects), a link to their store to pickup some FOXG1 merch (https://shop.foxg1research.org), and if you are REALLY interested, an excellent 20 pager explainer on her specific flavor of FOXG1 condition (http://bit.ly/Eliza-bean).

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